Advocates of the Achieving a Better Life Experience Act of 2013 (ABLE Act) are speaking out in an effort to get it signed into law:
“My name is Sara Wolff. I am a 31 year-old from Moscow, Pennsylvania, who happens to have Down syndrome but that doesn’t stop me from achieving “my” better life. I work as a law clerk and also at Keystone Community Resources in the Office of Advocacy. I am a board member of the National Down Syndrome Society (NDSS). I’m calling on Congress to pass the Achieving a Better Life Experience (ABLE) Act (S. 313/H.R. 647), a bill that will help individuals with disabilities to save for their futures.
I’m 31 years old, and I happen to have Down syndrome. I have two jobs, and lead an independent life, however, when my mom died suddenly last year, things got a lot harder for me and my family. I want to support myself and save money for my future, but if I save more than $2,000, I’ll lose the benefits I depend on like Medicaid and Social Security.
That’s because of a law that says that people with disabilities like me can’t have more than $2,000 in assets or we risk losing the benefits we need to live. For me, living on my own, that means I can’t even save enough to put down rent and a security deposit on an apartment. This law keeps me dependent on other people, and that’s really scary now that my mom is gone.
But, there is a solution: the ABLE Act.
When the ABLE Act passes into law this year, it will change my life forever. I lost my mother this past year, Connie, to a sudden, rapid illness. With my whole life ahead of me, I need an ABLE account to plan for my future. And, I am not alone, like most individuals with disabilities, people with Down syndrome and other conditions are out living their parents.
This video from Our Special Voice explains the ABLE Act in a little more detail: